The boys are doing really well. Lucas continues to fight his infection but seemed much more alert this morning. He had a 3rd blood transfusion yesterday and today he looks more pink and is breathing better. He can’t seem to get off the oxygen yet though. They have it at its lowest level and they take […]
Lucas’ 24 hour blood culture came back negative which means the antibiotics are working and my little boy is working hard to get rid of the bug. So Lucas’ haircut looks awful. Haha. We are thinking we’ll just shave his entire head. Let him start from scratch. And that way it’ll be easier for you […]
Your nurse mentioned you two being pooping machines. Haha! Healthy digestive systems runs in the family. Sebastian’s PKU follow up screening came back negative. Yay! And his central line was taken out on the 10th. On the 11th, they took him off the high flow which he was on for a couple of days just […]
Thankfully, yesterday we had 10 wonderful friends help us move into our new apartment. It only took 3 hours. So that’s one less thing to think about. We are still hoping to sublease our old apartment soon, so keep your fingers crossed! The boys are doing great! They are both gaining weight steadily! Both have […]
Lucas came off the high flow! He needs to focus on taking some slow deep breaths. Daddy also changed his 1st diaper tonight. Sebastian peed all over him. Haha! That’ll be the 1st of many. The boys seem to be doing so well. The doctors and nurses are very proud of their hard work. The […]
Thank you to all of you sending your prayers to our boys! They are both doing wonderfully! Yesterday, they were both graduated to INTERMEDIATE CARE from INTENSIVE CARE. Yay! Everyday the boys seem to be more alert. They recognize mami and daddy’s voices. They love to snuggle. Today mami will start reading some books to them. We’ll start with […]
Aunt Amanda came to meet the boys today and it looks like she fell in love. A couple tears came down. In the last couple of days, Lucas has come off insulin and is eating 2ml of milk. His vancomycin has been reduced which means he’s fighting off that infection. Sebastian has finished phototherapy and […]
In the past week we have done our very best to grow and mami and daddy keep telling us we are doing such a wonderful job! Lucas: “I escaped phototherapy and have started to drink some of mami’s milk. I can only tolerate 1ml every 2 hours. I’ve had some good poops to clean out […]
Yay!!!! Lucas came off the CPAP completely so no breathing assistance. Sebastian came off the photo therapy for jaundice so his goggles are off and we can see his little eyes. Good afternoon!
