Remaining positive and patient
We will be home soon and our NICU 2 plus months will be a distant memory.
Yesterday at rounds we were told that unfortunately discharge may not be until after the weekend. The doctors are waiting to consult gastroenterology and surgery for Lucas. After blood work came back showing that Lucas’ unconjugated bilirubin is not lowering but increasing they decided to do further testing. Yesterday an abdominal ultrasound was performed showing the possibility of malrotation of upper intestines. Today the ultrasound will be followed by a barium test to definitely confirm he has it or not. Further blood work and urine samples have been done and we are waiting for those results. Luckily, Lucas seems to be doing just great. He doesn’t seem to be bothered by any of the poking or proding. He’s been such a great champ. Look at him posing for the camera. Haha!
The boys yesterday also got their first rounds of immunizations. They did great. A short loud cry from the sting but quickly recovered. I think mom shed more tears than they did.
3 Comments
cristina mogdasy
Good idea with the blog, so we can follow the boy´s evolution. So great that they are 2 months old !! I hope that Lucas bilirrubin begin to decrease spontanously, may be it is immaturity of his liver enzymes.
Alanna Nanny Lowe
I know this bilirubin thing will resolve itself! Lucas just likes to do things his way. You’ll all be home soon.
caitlin
Hang in there… almost home, and the NICU will be a distant memory soon enough
We think of you every day
take care, Caitlin, Jeremy and Gabe